Noah’s needs list.
Noah
Rochester, MN
Age 2
Noah has Dravet Syndrome, he was diagnosed in December of 2024.
Dravet Syndrome is a rare disease and a form of epilepsy with frequent and difficult to treat seizures and significant developmental delays.
At the moment Noah’s seizures are random and uncontrollable, his main triggers are Illness and heat. We are currently looking into other treatment options and there are treatment opportunities out of state.
Although there is a lot of unknowns until Noah gets older, our family remains positive and full of hope. God has brought such overwhelming support and kindness through our family, friends and community.
We are blessed to have Noah's Amazing care team at St. Mary's hospital and we are so grateful and thankful to you all.
So many people have reached out for ways to help, both near and far. Besides yummy meals and a warm shoulder to lean on, Noah will need a few things to keep him comfortable and seizure free in the warmer months and on his travels outside of the home. Here is a way you can help Noah!Heat/Summer
Evapolar evaCHILL Portable Air Conditioners - Portable AC Unit - Small Personal Evaporative Air Cooler & Fan for Desk, Office, Car, Camping, Grey
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$98.00
NEW Shark ChillPill — The Only 3-in-1 Personal Cooling System with InstaChill Cooling Plate, Dry-Touch Mist, and Powerful Fan, Handheld, Wearable, Rechargeable Battery, 10 Speeds, Glacier, FA022BL
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$149.99
Epilepsy Tinted Glasses for Kids - Yogi
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$149.00
Shark FlexBreeze Pro Mist Fan — Indoor & Outdoor, Integrated Misting, Pedestal to Tabletop, Corded or Cordless, Up to 24-Hr Battery, Oscillating, Charcoal Grey, FA302 (2025 Release)
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$249.95
Sunday Afternoons Kids' Ultra Adventure Hat, UPF 50+ Sun Hat for Girls, Boys with Neck Cape
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$33.52
Travel and Hospital visits/stays
PILLANI Kids Travel Tray for Car - Car Seat Tray with Activity Sheets & Pens, Road Trip Essentials for Car & Airplane, Must Have Toddler Travel Lap Desk Accessories - Road Trip Activities for Kids
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$26.95
Deejoy Toddler Utensils - Stainless Steel Spoons and Forks, Kids Silverware Self Feeding Flatware Set with Travel Safe Case (Green)
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$10.99
hiccapop Blackout Tent for Pack and Play, Patented Portable Crib Tent, Blackout Canopy Crib Cover, Sleep Pod for Kids, Black
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$89.99
Noah’s essential everyday items.
Wants: Unlimited
Baby Dry Wipe,100% Cotton,dry wipe cotton tissues,baby sensitive skin,taking care of baby skin,7.9 x 4.7 in 6-Pack (600 Count)
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$17.99
Wants: Unlimited
Mustela Baby Cleansing Water
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$38.99
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from $34.00
Therapy
ARK Oral Motor Probe, Sensory Tools for Feeding & Speech Therapy, Oral Motor Therapy Tools for Kids and Adults, Suitable for Autism, SPD, Sensory Integration, and More, Medical-Grade
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$13.75
BALAPET High-Density Foam Sensory Rocking Chair, Portable Sensory Chair for Kids with Sensory Needs,Waterproof PU Cover, Rocking Design
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$79.99
Vibration Plate Exercise Machine, Vibrating Fitness Platform for Lymphatic Drainage, Full Body Shaker Workout Equipment, Bluetooth Power Shaping Vibrate Plate, Board Sport for Home Exercise Gym
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$57.59
Tap It - The Wireless Pod Game
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$72.24
YBIKE USA Pewi Elite Blue, for Kids
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$39.99
Med supplies not covered by insurance
Ubbi Retractable Bag Dispenser for Diaper Bag, Portable Bag Holder for Travel, Newborn Baby Essentials, Diaper Bag Must Have, Includes 24 Lavender Scented Bags, Gray
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$4.99
Amazon Brand - Mama Bear Flushable Toddler Toilet Wipes, Unscented, Formulated without Fragrance, Hypoallergenic, Plant-Based, Septic Safe, 336 Count, 8 Packs of 42
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$11.54
Dettol Original everyday Protection Liquid Handwash - 200ml
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$5.23
BrainChild Nutritionals Active Folate Pure Liquid Extract Supplement - L-Methylfolate for Better Absorption, Improve Cellular Function, Support Immune System, Water Soluble B Complex, 1oz
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$16.99
Wants: Unlimited
Wet Ones Hand Wipes, 20 Wipes (Pack of 10)
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$17.91
Wants: Unlimited
Wet Ones Hand and Face Wipes, Unscented | Wet Ones Sensitive Skin Wipes for Hands and Face, 40 ct. Canister
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$3.28
Wants: Unlimited
Eucerin Baby Eczema Relief Body Cream, Fragrance Free Baby Eczema Cream with Colloidal Oatmeal, Ceramide-3 and Licorice Root Extract, 8 Oz Tube
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$17.69
Wants: Unlimited
Mustela Baby Diaper Rash Cream 123 - Skin Protectant with Zinc Oxide - Fragrance Free & Paraben Free - with 98% Natural Ingredients - Various Packaging
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$13.59
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from $13.50
Ambu A/S Res-Cue CPR Resuscitation Mask Kit with O2 Inlet One-Way Valve Filter Head Strap Gloves Wipe Adult Child Emergency Barrier Breathing Protection Hard Case Storage
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$9.00
Wants: Unlimited
ONE-CARE 1ml Oral Syringe with Cap - Sterile, Individually Wrapped - 100 Dispensers, Slip Tip, Uses include oral administration of medicine for infants, adults and animals
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$20.97
Wants: Unlimited
ONE-CARE 5ml Oral Syringe with Cap - Sterile, Individually Wrapped - 100 Syringes, Slip Tip, Uses include oral administration of medicine for infants, adults and animals
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$19.99
Wants: Unlimited
ONE-CARE 3ml Oral Syringe with Cap - Sterile, Individually Wrapped - 100 Syringes, Slip Tip, Uses include oral administration of medicine for infants, adults and animals
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$19.97
Wants: Unlimited
Medela ENFFEMALELD - Medela ENFit Female to Female Transition Connector
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$0.42
Wagon accessories
WONDERFOLD Cold Weather Shield Stroller Cover for Winter Made of Premium Breathable Cationic Fabric Filled with Cotton for Warmth, Hook-and-Loop Window Openings (Fits Only W2 Elite/Luxe)
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$145.00
Stroller Wagon Cargo Net, Stroller Wagon Accessories Organizer Compatible with WONDERFOLD All W-Series Models, Large Capacity Mesh Cargo Storage Net with Sorting Pockets for Dry Wet Separation
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$19.99
Wonderfold W2 Elite/Luxe Flex Canopy
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$79.99
Gifts
Reusable Sticker Books for Toddlers 1-3, Stickers for Toddlers 2-4 Years - Stickers for Kids Airplane Toys for Toddler 1-3, Toddler Travel Toys - Reusable Sticker Book Birthday Gifts for Boys Girls
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$9.99
Magnetic Fishing Game for Toddlers Ages 3-8 – Montessori Wooden Educational Toy with 28 Fish – Preschool Learning Toy for Fine Motor Skills, Travel, Airplane & Road Trips
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$9.99
Beary Brave book & bear deluxe gift set
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$85.00
ORSEN 8.5 Inch LCD Doodle Board Tablet Toy - Green Dinosaur Drawing Pad for Kids 2-6 Years Old - Christmas and Birthday Gifts
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$16.98
Magnetic Puzzles for Kids Ages 1-3, Travel Toddler Puzzles Ages 2-4 Year, Excavator Refrigerator Magnet for Kids Learning Gift for Road Trip
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$11.23
Magna-Tiles microMAGS Travel Set Deluxe 55-Piece Magnetic Construction Set, The Original Magnetic Building Brand
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$39.99
16-Inch Rechargeable Doodle Glow LED Note Board, 7-Color Light Modes, Neon Art Dry Erase Light Up Drawing Pad with Built-in Stand, Sketching Gift Toy for Kids/Girls/Teens, 5 Markers & Tracing Book
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$29.99
Cash funds
Wants: Unlimited
The Gift Card Shop Visa Baby Blocks eGift Card - 25
$50.00
Wants: Unlimited
The Gift Card Shop Visa Baby Blocks eGift Card - 50
$50.00
Wants: Unlimited
The Gift Card Shop Visa Baby Blocks eGift Card - 100
$50.00
Shoes for Noah’s mobility.
Any amount
Venmo, PayPal
Music Therapy
Any amount
Venmo, PayPal
Purchased
Purchased
Owlet Dream Sock Travel Case - Keep Your Baby Monitor Safe and Organized On-The-Go
Purchased
Baby Delight Lunaire Full-Size Mesh Crib & Playard - Charcoal Grey
Purchased
Momcozy USB Rechargeable Handheld Cooling Fan for Travel - Sage Green
Purchased
Versa-Brella UPF 50+ Personal Sun Shade - Portable Umbrella for Sports & Outdoors - Secure Clamp, 360-Degree Swivel Adjustable Position for Maximum Sun Protection - Compact with Carry Case
Purchased
LifeVac The Perfect Baby Gift - Blue
Purchased
Mumba Baby Ear Protection Noise Cancelling Headphones - Earmuffs for Babies and Toddlers - Ages 3-24+ Months
Purchased
QPAU Inflatable Toddler Travel Bed with Tent, Baby Crib Tent, Portable Kids Air Mattress with Safety Bumpers, Ideal for Home, Grandma's, Camping, Traveling -Includes Fast Electric Pump
Purchased
WONDERFOLD All Weather Mat W2 Stroller Wagon Accessory Made from TPE to Protect Wagon from Dirt and Water (Fits Only W2 Models) - 30” Length x 16” Width x .75” Height
Purchased
Kids Bluetooth Headphones, Lightweight Wireless Headphones for Kids, 85/94dB Volume Limited, 60 Hours Playtime, Bluetooth 5.3, Over-Ear Toddler Headsets with Built-in Mic-Purple
Purchased
Cares Airplane Safety Travel Harness For Kids - Toddler Travel Restraint - Provides Extra Safety For Children on Flights - Light Weight, Portable, Easy to Store and Installs In Minutes.
